The Sangli sisters are covered from head to foot in thick hair & this is a rare genetic mutation, affecting just one in a billion people. This is known as werewolf syndrome.
They live in a small village near Pune, central India. Savita, 23, Monisha, 18, and 16-year-old Savitri Sangli have inherited this disorder from their father. It’s also known as the hypertrichosis universalis disorder. Hypertrichosis universalis is a genetic mutation, in which cells that normally switch off hair growth in unusual areas, like the eyelids and forehead, are left switched on. They also have three other siblings but they don’t have this disorder.
They use special creams to combat their hair growth. They hope to fund laser surgery to cure them of their excessive hair some day. Moreover just like other girls, they also wish to get married.
Laser surgery would cost 350,000 Indian rupees - or £4,500 per girl but they cannot afford it, as they are not rich people. But documentary filmmaker Sneh Gupta is planning to make a film of the girls in a bid to help their dream of becoming almost hair free.
Eldest daughter Savita, said: 'When I used to go to school the boys and the girls would shout, 'hairy face', 'horrible looking', 'don't sit next to her', that's how they behaved.
'Marriage is not an option for us, it's not likely to happen, who is going to marry us when hair keeps growing on our faces.'
Well the reason I wanted to share this story is that people always find faults even in those who don’t have such rare genetic disorder. Sometimes it’s the height, sometimes it’s the weight, sometimes it’s the complexion, etc, etc. Life must be pure torture for these girls. How would one feel if someone calls you 'hairy face', 'horrible looking', & such things? I just hope fund is somehow collected & these girls get rid of this disorder. I also hope they get married. And all those who are eternally sad cause of this or that reason need to think about people who live in perpetual hell. We ought to be ashamed for even complaining about petty issues. If you won’t forget about them, please do pray for them…at least once. That’s the only thing we can do for them.
They live in a small village near Pune, central India. Savita, 23, Monisha, 18, and 16-year-old Savitri Sangli have inherited this disorder from their father. It’s also known as the hypertrichosis universalis disorder. Hypertrichosis universalis is a genetic mutation, in which cells that normally switch off hair growth in unusual areas, like the eyelids and forehead, are left switched on. They also have three other siblings but they don’t have this disorder.
They use special creams to combat their hair growth. They hope to fund laser surgery to cure them of their excessive hair some day. Moreover just like other girls, they also wish to get married.
Laser surgery would cost 350,000 Indian rupees - or £4,500 per girl but they cannot afford it, as they are not rich people. But documentary filmmaker Sneh Gupta is planning to make a film of the girls in a bid to help their dream of becoming almost hair free.
Eldest daughter Savita, said: 'When I used to go to school the boys and the girls would shout, 'hairy face', 'horrible looking', 'don't sit next to her', that's how they behaved.
'Marriage is not an option for us, it's not likely to happen, who is going to marry us when hair keeps growing on our faces.'
Well the reason I wanted to share this story is that people always find faults even in those who don’t have such rare genetic disorder. Sometimes it’s the height, sometimes it’s the weight, sometimes it’s the complexion, etc, etc. Life must be pure torture for these girls. How would one feel if someone calls you 'hairy face', 'horrible looking', & such things? I just hope fund is somehow collected & these girls get rid of this disorder. I also hope they get married. And all those who are eternally sad cause of this or that reason need to think about people who live in perpetual hell. We ought to be ashamed for even complaining about petty issues. If you won’t forget about them, please do pray for them…at least once. That’s the only thing we can do for them.
